Blair’s story is important because it is, all too often, the real, much messier story of disability: trying, sometimes succeeding, sometimes failing, sometimes having to know when to stop, having to know when you can’t.
Looking for something specific?
All in Life
Blair’s story is important because it is, all too often, the real, much messier story of disability: trying, sometimes succeeding, sometimes failing, sometimes having to know when to stop, having to know when you can’t.
I’m not grateful for what I’ve been through, but I’m working on being less angry at the universe and less angry at my body.
if you feel worn out from the arduous task that is trying to live your life in a body that keeps failing you, you aren’t alone.
When a friend asks you how long you usually have to wait this type of thing out, you falter. Because usually, it lasts a few days. But once, it consumed an entire year of your life.
When it comes to yoga, or dating, or making new friends, I’m much more hesitant to take big swings than I ever used to be.
When I hear a friend with Crohn’s describing their struggle, it brings up those emotions that are hard to feel on behalf of myself.
I’ve always wanted to be the good girl, and in sickness, that has translated to a desire to be “the good patient,” an ideal that this book has made me realize is impossible to attain –– because it doesn’t actually exist.
The harder pain to swallow was the voice in my head that just kept saying, "why can't you be normal?"
Life is not a mad dash to experience everything you possibly can –– it's about prioritizing experiences that are important to you and taking the time to savor them.
Sometimes our minds block out memories that relate to high levels of stress or trauma –– but life isn't about remembering the happy stuff and forgetting everything else.
Know that being diagnosed with a serious health problem is a significant type of trauma, and it's okay to treat it as such.
There's a saying that goes "Health is a crown that the healthy wear, but only the sick can see it."
I firmly believe that learning to enjoy being alone is one of the hardest things to do in life –– and if I hadn’t had to do it via immersion therapy, without a say, I might still not be comfortable.
This year forced me to become an adult in ways I otherwise would have continued putting off for another decade.
Because as much as I want to go dance to Rihanna and drink a vodka soda and be there when someone pukes off a balcony, the FOMO is often outweighed by the FOGO.
Because when you’re young and sick and feel like you’re missing out on real life, you’ve got some stuff to be angry about.
Thanks for the constant reminder that no one is ever as alone as they might feel, and that the roller coaster has as many ups as it does downs.
The thing about these opinions is that for pretty much any opinion that exists on the internet, the inverse of it exists as well.